An evidence-based approach to learning

View some of the following research projects and studies that have been initiated in the Pilbara region:

Pilbara FASD Project

Telethon Kids bring together community, researchers, practitioners, policy makers and funders, who share their mission to improve the health, development and lives of children and young people through excellence in research.

Telethon Kids is working in partnership with communities in Hedland, Yandeyarra, Jigalong, Parnngurr, Punmu and Kunawarritji to:

  • reduce the rate of alcohol use in pregnancy
  • increase community awareness and knowledge about FASD and how it affects children and young people
  • increase community knowledge of the supports available to assist women to abstain from drinking alcohol during pregnancy
  • increase community-led advocacy activities relating to FASD prevention in the Pilbara

Visit the website.

Pilbara Faces

The Roy Hill Community Foundation has partnered with the Perth Children’s Hospital Foundation to fund an innovative program called Pilbara Faces, which uses 3D facial imaging technology to aid in the diagnosis, treatment and monitoring of rare diseases in Aboriginal children.

Pilbara Faces is led by clinical geneticist, Dr Gareth Baynam and the Genetic Services teams at King Edward Memorial and Princess Margaret Hospitals in Perth.

Visit the website.

Attitudes and practices towards the COVID-19 pandemic in Australia: research study

The current coronavirus disease (COVID-19) pandemic has seen governments implement a range of public health strategies to reduce community transmission of the virus. The most significant of these strategies is the social distancing rules that have been established and enforced to varying degrees in different Australian states, in addition to public health promotion campaigns regarding hygiene practices.

This current research study seeks to explore attitude and practices towards the COVID-19 pandemic, social distancing rules and hygiene practices. Southern Queensland Rural Health are hoping to use the results of this study to explore how this pandemic has been communicated, and received and actioned by the Australian public.

To get involved, email sqrh@uq.edu.au or call (07) 4633 9798.

If you would like to speak to someone from the University of Queensland who is not directly involved in the research project, you may contact the Ethics Co-ordinator on 07 3365 3924 or 07 3443 1656 or email: humanethics@research.uq.edu.au.

If you have a research project that is being conducted in the Pilbara and would like us to feature it, email us at contact@phpn.com.au

Interested in conducting research in Aboriginal communities in the Pilbara?

If you wish to conduct research in Aboriginal communities within the Pilbara, you are required to demonstrate appropriate consultation and follow the regions necessary processes and gain approval prior to submitting your application to the Western Australian Aboriginal Health Ethics Committee.

The Western Australian Aboriginal Health Ethics Committee (WAAHEC) is one of three Aboriginal specific Human Research Ethics Committee (HREC) and is recognised and registered with the National Health and Medical Research Council (NHMRC) the peak ethics body in Australian Health and Ethics Committee (AHEC).

The WAAHEC was established to promote and support quality research that will be reflective of the needs of the community, as there was concerns with the increased research being conducted in Aboriginal communities in Western Australia. The WAAHEC’s objectives are to effectively monitor ethically sound, culturally appropriate, determine priorities to the research and ensure the benefits to Aboriginal people.

The committee has a partnership with Pilbara Aboriginal Health Planning Forum. A copy of the research application form can be obtained by emailing: pams.cso@puntukurnu.com

For further information visit https://www.ahcwa.org.au/ethics